Sorry. I was a bit angry.

Posted on October 13, 2015

It’s been almost a year since I last posted about the challenges of returning to work after my son died. As always, I hope that it’s helpful for anyone else on a similar journey and friends who kindly ask how life is.

You don’t stop grieving for a child, you just learn how to manage it. For me the key has been to work with it rather than be controlled by it, which is the main reason why I stopped blogging regularly. I was stuck in a self-defeating cycle of grief, writing about it and just going back and forth between the two.

Returning to work has been more difficult than I expected. In some ways the personal emotional impact has been easier to handle. You expect to be distraught if your child dies. It’s awful but natural, whereas going back to work has often felt anything but.

I’m self employed which gave me the flexibility to take time off but, when I did finally go back, I found that grief had stripped me of discipline and ambition. It felt pointless and banal. It had been easy before Edward died – I picked up work regularly but now, without any motivation, it dried up. On the few occasions I did get work I found it hard to focus and my standards dropped.

Financial stress was never on my radar as a consequence of grief but, as the work disappeared, money became a real problem. In the end we were forced to live off our savings but at least we had some. I’d saved up a decent amount buy a house after Edward’s operation to be closer to my wife’s parents in Yorkshire. We knew we would need help as he grew up and it made sense to be nearer to them. It was all part of Plan A to get Edward to adulthood and a possible heart transplant, but when he died it all went out of the window along with my sense of purpose. I’d never considered Plan B.

Today those savings are almost all gone. However, I can choose to feel sorry for myself or be grateful that I had the money at all. I have chosen the latter because the alternative is self-pity which will achieve nothing. And that’s what this post is about – choice. The path out of the darkness of child loss is about choosing to take it. Sure it needs time – and I’m still on the journey – but it’s there when you’re ready, even if the world at the end of it is different from the one you knew before.

I reasoned that some decent work would eventually turn up, that we had been unlucky enough already and deserved a break. A sort of natural justice. But nature is indifferent; it doesn’t judge. In fact, it doesn’t care. We weren’t in this position because we deserved it or due to some karmic force but because shit happens, something I finally acknowledged during a sobering look at our finances. We had three months left before absolutely everything ran out.

There’s nothing quite like the fear of your family being homeless for motivation. I threw the kitchen sink at it and started networking furiously. I met up with old contacts and did the rounds. I told them I was back and ready. I applied for the role of Managing Director of an ad agency and quickly ended up on the final shortlist of two candidates. I didn’t get it but it was close and just the confidence boost I needed. Encouraged, I embarked on a hectic schedule of meetings and interviews with ad agencies and brand consultancies, almost all of which got to the final stage – more than 30 interviews in total. It was exhausting.

I didn’t get a single offer. As each one reached its increasingly inevitable conclusion, I started to sink again. I had always been good at interviews and had stuck to the same formula that had worked so many times before. The problem was that I wasn’t the same person anymore.

The feedback was indicative. One said I had all the skills they needed, but was constantly distracted. Another that I was a great fit but didn’t believe that I actually wanted the job, even though we were at the fifth and final interview stage. One remarked that there was something ‘not quite right’ about me, that I ‘was there, but not there’. Another felt I was too intense and a little desperate. I was. The final and most telling blow was an interview with an agency CEO and his board. The first two meetings had gone well but this one was a train wreck. I completely flunked it. I was rude and aggressive. Their feedback was scathing and they questioned if I had any of the skills or experience that appeared on my CV at all.

Looking back it’s easy to see what was going wrong. I was expecting people to make allowances for what had happened. I would bring up Edward’s death in conversation, in a ridiculous bid to make it sound matter-of-fact but all it did was make everyone feel uncomfortable. I had lost my sense of self-awareness and perspective. I was pretty much saying ‘Hey, my son died but I’m fine, honest, even though I keep talking about it. Can I have a job now please?’ It’s not a great strategy.

Fast forward a few months and I am now contracting with a great bunch of guys at a very smart management and brand consultancy in Cheltenham that I discovered by pure chance. I haven’t caused any arguments or insulted anyone so I’d like to think that the changes I made after all those interviews have worked. I also haven’t told any clients about Edward, just my colleagues. I don’t feel the need to anymore, which is progress on its own. I know some of them will read this and find out, but that’s ok, they’ve got to know me first.

Perhaps the timing was right – the opportunity appeared just as I sorted out my head and the money ran out. In fact, three jobs turned up at the same time and, unlike me, I chose the one with the least money but felt right. Progress again. I feel like saying something trite about never giving up, but it’s more about learning how to manage your grief. I still have my moments. Occasionally things get on top of me or something triggers a difficult memory but I go for a walk and clear my head. My confidence is slowly returning and I’m starting to deliver decent work again. Who knows where it will lead, but it’s good to be here after all that’s happened.

What changed? Well, the most significant moment came courtesy of my GP. I was feeling genuinely unwell. Nothing specific, just low, physically and mentally. I had been sleeping 2-3 hours a night for more than 6 months and was exhausted. I was avoiding sleep because I hated the quietness and sadness that came with it.

I was expecting him to give me a pep talk. I’d heard it all before and ignored it but this time he said something that stuck.

“You need to stop fighting. There’s no enemy. There’s no one to fight except yourself.”

Since the moment we had been told that Edward was going to die I had been consumed with a determination to fight. He was the ultimate fighter to me, and an unbeatable one. I felt that it was my duty to fight with him and then for him when he couldn’t. And then, when he lost his battle, I began to fight everything in disbelief and anger. Even now, more than two years on, I often still can’t believe that it happened. Fighting got me through the early days in the form of defiance but it evolved into something else – rage. Rage about the delayed procedures that might have saved his life, the failure to spot the infection, the operation’s 97% success rate, the pain he was in, the fear on his face, making the decision to turn off his life support, his death, our grief, my broken heart, compounded by the loss of our savings and my inability to find work. None of this was our fault, so it had to be somebody else’s, perhaps everybody else’s. Right? Wrong.

I wanted to fight everyone and anything. I regularly punched walls, leaving my hands bruised, swollen and hidden in my pockets. In the car I’d shout and swear, stopping randomly to get out and kick the shit out anything I could find – a tree, a road sign, the ground. I have never been suicidal, but I often thought about ramming the car into a tree or driving off a cliff on the ridiculous assumption that the moment of impact would somehow be gratifying. All of this was interspersed with incredible moments of peace, tranquility and a new found appreciation of love which I would tell everyone about rather than the anger, which I found embarrassing. It was a period of incredible highs and lows and very confusing.

And then the doctor said one more thing. Something that anyone who has read my piece on what not to say to a bereaved parent knows would have previously set off a mental hand grenade.

“Edward wouldn’t want this. He’d want his dad to be happy.”

I wanted to pick him up and throw him out the fucking window but he was right, again. And he had what no one else did. Medical evidence – high blood pressure, anaemia, insomnia and constant stomach pain. It was time to stop fighting.

What happened that day was seminal but I had to choose to hear it. I still have low periods and get flashbacks that stop me in my tracks but I accept them rather than fight. I still throw punches and shout, mostly metaphorically as anyone who reads my posts on Facebook will know. I set aside time to grieve, knowing that it serves a purpose. I’ll watch a video of Edward, look at some pictures and think about him. It’s exactly what another bereaved parent told me they do and I’ve found that it works for me. It’s a strategy for life. There are so many things that other parents have told me that turned out to be true. If there is one piece of advice I have for anyone else who loses a child it would be to speak to others who have gone through something similar. They’ve been there, done that and are still standing. They can help you.

One of my oldest friends lost a child before me and has been instrumental in getting me through this. He’s listened when I’ve needed it, made me go out and have a drink when I’m being miserable, told me when I’m being too self-indulgent and lifted me when I’ve felt that I can’t cope. Sometimes, he’s just been there. Occasionally I’ve wanted to punch him too, but he’s 6 foot 3. It’s easier to love him, which I told him many times after several pints a few weeks ago. Poor bloke.

If I have any regrets, they are about not confronting the anger earlier but I probably had to go through it to get to where I am today. I have, to my shame, shouted at my children. I have shut people out, for which I am sorry, but it is what it is.

It’s a shame about the money but that’s life. In a way, it wouldn’t have mattered if it was millions of pounds. Edward was priceless. I hope that makes sense. I have my wife, my children and my family. My wife, especially, has shouldered so much whilst I’ve been off fighting an imaginary war. She and the children are irreplaceable, whereas I can always rebuild a bank balance and try to buy a house another day.

I will always miss Edward but the grief is now just a part of me rather than the whole of me. It doesn’t define me anymore. I’ve got a new normal and it’s ok. The tears and anger still come, and they can be brutal, but I don’t go looking for them now. They’re good enough at finding me on their own. Edward makes me smile when I think of his beautiful little face, the joy and pride he brought into our lives and his cheeky sense of humour. I still say good morning to him first thing, blow him a kiss every night and talk to him throughout the day. Every day I tell him, as I did throughout his life, how much I love him. Some things will never, ever change.

(You can read about Edward’s journey here: http://hlhsdiary.com/wp/ and read related blog posts by clicking on the ‘Life’ filter at the top left of this page)

What Others Are Saying

  1. Bob Morris October 14, 2015 at 6:55 am

    Thanks for your honesty Andy – continuing to pray for you and the family. Bob

  2. Nerys October 14, 2015 at 8:10 am

    xxxxx

  3. Karina Coates October 15, 2015 at 4:23 am

    Thank you for writing this Andy.

  4. Dan Eley October 16, 2015 at 4:22 pm

    Well done Andy, I really admire you for writing such an open and confessional blog. I knew would find your way out of this but you needed your time and to work it out for yourself, at least it was that way for me after my accident. It took me two years by the way so you’ve turned the corner quicker than I did. Sometimes I think we have to go all the way to the bottom (and you really did) to realise that there is only one way you can go from there. I know you will never Edward’s passing but I do know you have a beautiful family and a lot to live for! A big hug bro 😉

  5. Sue Devereux October 16, 2015 at 9:06 pm

    You are truly amazing Andy and have such insight. I am proud of you in so many ways. Keep going forwards cousin. I’m hoping to catch up with you soon. Lots of love x x x

  6. Nigel October 21, 2015 at 7:42 pm

    Thank you Andy!

  7. Nigel October 21, 2015 at 7:43 pm

    Thank you!

  8. Sally November 14, 2015 at 8:21 pm

    You are all frequently in my prayers.
    Forever Five

    X

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